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Manipal Journal of Nursing and Health Sciences

Abstract

Background: Epilepsy is the fourth most common neurological disorder which affects people of all ages. Inappropriate management during seizure episodes among the epileptic patients can lead to complications. That is why, it is important for caregivers of epileptic patients to know about the disease and its management. Objective: To assess the problems, awareness and practices of caregivers of epileptic patients regarding home management of epilepsy. Material and Methods: A descriptive approach was employed. A total of 60 subjects (caregivers) visiting neurology OPD of tertiary care hospital in the month of April 2014 were enrolled. Information profile, details and information regarding problems, awareness and practices of caregivers of epileptic patients were gathered using a validated interview schedule. Results: The subjects were in the age range of 18 to 65 years with the mean age of 39.3±12.7 years. Mean duration of care (months) ±SD was 70.4± 87.3. More than half of the caregivers (51.7percent) felt stressed regarding caring for their relative and trying to meet other responsibilities of family and work. Around one fourth of the caregivers (28.3percent) felt that their social life had suffered because they were caring for their relatives. About 3/4th (76.7percent) of caregivers were found to have good epilepsy management practices at home. Conclusion: Caregivers’ management practices were good among most of the patients but they were experiencing some problems while caring for their relatives because of lack of awareness

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