Manipal Journal of Nursing and Health Sciences


Introduction: Thalassemia is one of the most common genetic diseases known to mankind. Children with Thalassemia require medical, surgical and nursing care. Family members and caregivers of the affected children play a vital role during treatment. Moreover, they also undergo abundant stress and emotional changes concerning their children’s lives. Objective: To identify factors associated with stress and to correlate the factors with selected demographic variables in caregivers of children with Thalassemia. Materials and Methods: A descriptive survey was conducted among sixty caregivers of children with Thalassemia, admitted in the Thalassemia ward of a selected hospital in Bangalore. Demographic data of the subjects, and the perceived stress were assessed using structured interview questionnaire. Data were analyzed using descriptive and inferential statistics. Results: Results showed that caregivers experienced significant stress on the following domains: daily care stress (DM1) with a score of 2.82 +1.14 (mean±sd), family emotional stress (DM2) 24.43± 9.65, social stress (DM3) 3.30±1.59, financial stress (DM4) 0.90±0.30 and personal development stress (DM5) 3.77±1.73. Results indicated a significant positive correlation between the stress domains and age, (r=0.64, p

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